The book is a heartfelt memoir that explores the challenges and triumphs of parenting a child with dual diagnoses. Blending honesty, vulnerability, and strength, the author introduces their “alter ago” a source of inner resilience that emerges in moments of struggle. This inspiring journey sheds light on the realities of caregiving, the complexities of navigating healthcare systems, and the transformative power of unconditional love, perseverance, and self-discovery.
A word from the Author
Neeley is an author, healthcare professional, and events organiser. When not writing, she engages in philanthropic activities aimed at supporting individuals with various needs. Her hobbies include cooking, walking, swimming, travelling, and dancing. Neeley plans to donate half of the profit from her new book’s sales to assist children with additional needs.
Precious –
The book cover captures the author’s emotional struggles and journey, using shadow to represent her inner battles and resilience as she supports her child with a double diagnosis.This cover contributes to the overall connection to the book.I appreciate how it deepens my connection to the book. The first chapter evokes memories of my own childhood and l find parallels between my experiences and the author’s story.
I enjoy the writing style, which skillfully weaves past and present and link career challenges to parenting. Neeley’s transition from sadness to peace and joy is especially notable. I am finding the book highly engaging as l approach its conclusion. It is a commendable work.
Eniola Oyegunle –
I first acknowledge my bias as someone who knows the author personally and is a
parent navigating a similar, unique parenting journey. However, this does not take
away from the gem that this book is. This book is a true memoir. It starts with a glimpse
into the author’s childhood and upbringing. It presented opportunities for reflection by
presenting thought-provoking questions at the end of each chapter.
Then the double diagnosis story touched me deeply and resonated with me so
strongly. The complexities associated with balancing your relationships, career and
family when raising children with additional needs ring true for many on this journey.
The book is a reminder that awareness is still a long way away, and we need to
develop “thick skin” to ensure we don’t lose it. Another timely reminder that when you
have a spouse who is committed, it can help to take some load off.
The vulnerability of opening about challenging situations, including one we rarely talk
about, i.e. how a diagnosis can challenge or strain your relationship with God, was
included in the book. It was clear the author had a well-rounded system of coping
besides her inner resilience, which included support groups, which she described as
life-changing.
Advocacy to safeguard her son’s right to education. Gosh, this is one you must read
so much to learn from a mother who fought the system to get her child the needed
support.
The author is a strong advocate for self-care. This chapter is a must-read for those
who struggle with balance.
Then the chapter on a call to policy makers is a must-read for those in places of
authority that genuinely want to make real change. It includes voices from multiple
individuals on a similar journey. I could go on and on, but I think I have revealed
enough.
Don’t judge a book by its cover is what I will say on this one. It might not be the prettiest
book cover, but the message there in is timely, and I recommend it to any parent,
caregiver, advocate or anyone who genuinely wants to feel the raw emotions of raising
a child with additional needs.
My key takeaways, quoting directly-
–
“purpose and happiness are not singular destinations but ongoing journeys and
processes of becoming”
.
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“Going through the five stages of grief- guilt, denial, loss of dreams, anger and
acceptance”
.
Well done, Neeley. I applaud your audacity to do this, your forever supporter, Eniola
Oyegunle